Elizabeth Glaser Pediatric AIDS Foundation:
EGPAF Achievements and Milestones
“What became apparent immediately was that there was nothing out there for children. And as a mother, that was just unacceptable” Elizabeth Glaser
The Elizabeth Glaser Pediatric AIDS Foundation receives a top rating from the American Institute of Philanthropy and the “Best Charity” from the Reader’s Digest magazine.
Committed to bringing hope to children with AIDS, Elizabeth, Susan and Susie quietly create the Pediatric AIDS Foundation around Elizabeth’s Kitchen table. With no research in progress for children, the foundation set up what would become the first of many “Think Tank’s” at the National Institutes of Health. These “Think Tanks” promote the unity of the best researchers where they share and exchange ideas and information. To date, the foundation has held 16 “Think Tanks” and 17 workshops. Each session concluded with Elizabeth’s favorite toast… Tequila shot.
The world learns of the Glaser’s struggle with and courageous fight against AIDS. The Foundation awards its first grant to Dr. Richard Stiehm at UCLA for his research on immune dysfunctions in HIV infected children.
The Foundation brings its cause to Washington, D.C. to educate and advocate for federal funding for pediatric drug testing and research.
Republican Senator Hatch and Democratic Senator Metzenbaum team up with the PAF to create their first fundraiser, a “Night to Unite”. It would raise over $1 million! Since then, all events would always be bipartisan focusing on partnership and that all these events would be 100% underwritten. Later, family fundraiser’s like “A Time for Heroes” were created. President and Mrs. Reagan attended, lending their names as the Honorary Co-Chairs. This first of its kind event raised more than $1 million and has become a popular yearly event!
Paul and Elizabeth Glaser testify before congress about insufficient funds, inadequate testing of drugs for children and the importance of increasing awareness about pediatric AIDS.
The Emergency Assistance Program is developed to assist clinics and hospitals with unmet critical needs in servicing children with HIV/AIDS.
Two years after the LA Times published the Glaser’s story, “People” magazine featured Elizabeth Glaser on the cover and told of Paul and Elizabeth’s story and struggle with HIV/AIDS. It sold over million copies and brought the awareness of AIDS to the forefront around the world. It demonstrated the fact that AIDS can happen to anyone.
An album inspired by James Taylor’s tape for Ariel was released by Disney “For Our Children” it went gold and raised over $4 million for the PAF. Paul McCartney, Elton John, Little Richard, James Taylor were some of the artists who contributed to this fundraiser.
With Mother-to child transmission still a major cause of children’s HIV/AIDS, Elizabeth encouraged physicians and scientists to share their information and work together to combat research problems. The resulting project, known as the “Ariel Project”, was a five year study on MTCT of the HIV virus involving 15 institutions across the United States. This research collaboration has brought MTCT down to less than 2% today.
“If we can share our wisdom, our light, our love in the smallest of ways – I know the world will be a better place. If we are not afraid to touch each others’ lives, hope will be our strength and love our prize” Elizabeth Glaser
Elizabeth Glaser speaks at the Democratic National Convention. Her incredible speech would raise the consciousness of people around the world and bring a greater awareness to the pandemic of HIV/AIDS as well as send out the call for more compassion and funding for research.
The Foundation’s Celebrity Carnival makes its debut in New York City as the “Kids for Kids Celebrity Carnival”. Held at the Industria Light and Magic Superstudio, it would also become a leading fundraiser.
The “Long-term Survivor Study” is launched focusing on examine why many HIV-infected children remain well for years, while others are unable to resist the destructive effects of the virus.
The Foundation and National Institute of Health initiate the 076 trials demonstrating that the drug AZT is capable of dramatically reducing HIV transmission from a pregnant mother to her newborn.
The Foundation begins a national PSA encouraging all pregnant women to get tested for HIV.
Elizabeth Glaser passes away from AIDS-related illnesses on December 3, 1994
Elizabeth created a legacy of hope for children and families around the world. Her courage, strength and commitment to making a difference for others will forever be inspirational.
The first “Elizabeth Glaser Scientist Award”, in honor of Elizabeth Glaser, exemplifying her spirit and dedication, and regarded as one of the most prestigious awards, is presented. A five-year award presented for critical research for children with HIV/AIDS.
The Pediatric AIDS Foundation is renamed as the Elizabeth Glaser Pediatric AIDS Foundation in honor of Elizabeth’s passion, dedication and commitment to helping children and families.
The first “Commitment to Children Award”, commends extraordinary people who join in its mission of improving the lives of children, is presented to First Lady Hilary R. Clinton on December 1 st, “World AIDS Day”.
The Foundation initiates one of the first clinical trials to test combination therapy in newborns. At this time, only six of the eleven drugs licensed for adults were approved for use in children.
The Fernwood Project is launched. Originated by Deborah Schoberlelin and Elizabeth, it was a 21-month project brings together students, teachers, parents, and community members in an effort to safeguard themselves and others against HIV.
The first annual Celebrity Golf Classic in LA occurred in October.
Kate Carr becomes president and CEO of EGPAF.
Thanks to the continuous advocacy work of the Foundation, the “Pediatric Rule” is established requiring drug companies to test their products for use in children as they do for adults.
The rate of MTCT continues to decline to less than 2% in the USA.
The “Call to Action Project” is established for the fight against global AIDS. This project works with developing countries in preventing newborns from being infected with HIV and providing support and care for all individuals infected with HIV.
The “Caring for Kids 101” is launched on World AIDS Day, December 1 st. A nationwide college outreach initiative that empowers students and student organizations to raise resources and awareness for pediatric AIDS. More than 300 college campuses have partnered with this program. Dance marathons are the core event where students dance for 12, 18 or 24 hours to raise funds.
“The Lancet” publishes the opinion from the foundations “Ethics’ workshop, which emphasized the need for ethically standardized research efforts to discover simple, effective and safe interventions to prevent mother-to-child transmission of HIV in the developing world.
Paul M. Glaser led the Foundation as it expanded its reach beyond HIV to help children who suffer from other serious and life-threatening illnesses. The “Glaser Pediatric Research Network”, a collaboration of five of the leading academic medical centers, conducts studies designed to explore the serious medical issues facing children. It focuses on how diseases are interconnected, how treatments for one disease help make progress in fighting other illnesses and how we can make a difference in children’s health issues. At its launch, Paul stated “I think it is the future of medicine.”
Beanie Baby “Ariel” by Ty Inc. was sold
exclusively as a fundraiser for EGPAF raising $3.4 million.
The Elizabeth Glaser Pediatric Research Network is launched brings together top pediatric researchers to accelerate progress in critical clinical pediatric research and helps to create model programs to improve health. Over $5 million has been committed to seven diverse studies.
Paul Glaser testifies before the Senate health, education, Labor and Pensions Committee on Capital Hill on the importance of ensuring the safety and efficacy of drugs used on children.
In Boston, MA, the Foundation hosted the first workshop focused on the pediatric implications of AIDS vaccine research.
The first annual CTA directors’ meeting is held in Uganda and is one of the largest international gatherings of people providing services to prevent MTCT of HIV in the world.
The Call to Action Project receives a three-year $15 million private donation by the Gates Foundation.
Dr. Kessler, Dean of the School of Medicine, is appointed Chairman of the Board of Directors of the EGPAF.
The Foundation establishes its first International Leadership Award designed to invest in trained individuals in resource-poor nations.
The United States Agency for International Development (USAID) recognizes the success of the EGPAF’s Call to Action project by entering into a 5-year cooperative agreement with the Foundation.
The “Time for Heroes” celebrity carnival successfully expands to another continent with Richard Gere in India.
It is the 15 th Anniversary of the EGPAF. What began from the belief and commitment of three mothers sharing the ideal that they could make a difference has resulted in the outstanding and successful foundation of work in providing positive changes for healthier, happier children and families living with HIV/AIDS around the world.
February 12 th is declared “Elizabeth Glaser Day” by Mayor Menino in Boston, MA.
The first annual “AIDS Walk Africa- Walk for Hope” begins with a 100 mile, 7 day walk through the heart of the pandemic of AIDS in Africa. Over $200,000 was raised in this first annual event.
The Emergency Assistance Fund awarded grants to 25 hospitals and clinics totaling $50,000.
Three International leadership Awards were named for a total funding of $1,568,160.
Project Heart is designed to expand HIV/AIDS care and treatment by including antiretroviral therapy to lower income persons in the developing worlds of Cote D’Ivoire, South Africa, Tanzania and Zambia. Project heart is a public-private partnership with the Centers for Disease Control and Prevention and non-government organizations abroad to develop new care and treatment programs.
The Foundation partnerships with the CDC as part of the President Bush’s Emergency plan for AIDS Relief.
On December 1, 2003, World AIDS Day, the EGPAF is featured in USA Today magazine. It credits the Foundation with making a real difference in the lives of children and families around the world.
The Foundation won a critical, hard fought battle to ensure that drugs are tested for use by children. On the ninth anniversary of Elizabeth Glaser’s passing, the Pediatric Equity Act of 2003 was signed into law ensuring that children have access to safe and effective medications.
Jake Glaser, 19, works for the Foundation carrying on the courage and strength of his mother, Elizabeth. (pictured here with Kate Carr, 2005)
“I am here today because my mom would not give up. She fought with so much courage, and what we need to do is take the same courage that she fought with, the same strength that she fought with and apply it to what we do today to save the children and families around this world.”
The five-year, $125 million cooperative agreement from the partnership of the EGPAF, CDC and USAID resulted from the Call to Action project for expanding care and treatment to families in the developing world.
The Foundation launches the Pediatric HIV/AIDS Vaccine Research, a program committed to funding creative and innovative research in this critical area.
The Foundation continues to strive for the well being of children and families around the world.
Elizabeth Glaser Pediatric AIDS Foundation convened a think tank meeting of nearly 40 of the world’s leading HIV/AIDS experts to discuss this issue and the future of PMTCT over the concerns that a resistance surrounding the use of single-dose nevirapine to prevent mother-to-child transmission (PMTCT) of HIV/AIDS.
The Elizabeth Glaser Pediatric AIDS Foundation launch’s the organization’s first South Africa office.
February 23rd, “ Elizabeth Glaser Day” in Boston MA
To date the foundation has:
- Held 16 “Think Tanks” and 17 workshops.
- Funded 244 Basic Research Grants for more than $23.5 million, 102 Scholar Awards for $6.4 million and 84 Short-term Scientific Awards for more than $519,000.
- Emergency Assistance Program has provided over 848 grants totaling over 3.5 million to 190 different hospitals and clinics for unmet critical needs in serving children with HIV/AIDS.
- The Elizabeth Glaser Scientist Award has awarded more than $22 million to 32 Elizabeth Glaser scientists resulting in additional $140 million in research funding from other agencies.
- The “Call to Action Project” is established for the fight against global AIDS. This project works with developing countries in preventing newborns from being infected with HIV and providing support and care for all individuals infected with HIV. There are presently 400 sites worldwide in 17 countries.
- The GPRN has invested over $2,281,000 in funding 20 young scientists as part of the GPRN Fellowship program.
- The International Leadership Award has funded six awards totaling $2,835,000.
- As of 2003, the CTA project has trained over 5,000 healthcare workers and provided counseling to more than 625,000 women, 80% of whom received HIV testing. Over 60,000 mothers and babies with critical preventative antiretroviral interventions.
- The Foundation supports Thailand’s PMTCT program reaching nearly 2 million pregnant women with counseling and testing.
- The Call to Action project expanded to include 370 healthcare sites in 18 countries. These sites will reach more than half a million women each year.
Target Time for Heroes: LA, a celebrity carnival for family fun, raises over $1 million almost every year since 1991.
Kids for Kids: NYC, a celebrity carnival for family fun, raises over $1 million almost every year since 1993.
AIDS Walk Africa – Walk for Hope: established in 2003, exposes walkers to a unique look at the aids pandemic in Africa where 35% of its citizens are infected with HIV/AIDS. Over $200,000 was raised in this first annual event.
Celebrity Golf Classic: Foursomes compete for the first prize trophy and gifts while raising funds for EGPAG.
Nautica Malibu Triathlon: An annual swim, bike and run triathlon with athletes, spectators and celebrities hitting the sandy beaches for fun and fundraising.
Oxygen Celebrity Dodgeball: Sponsored by Oxygen, celebrities face off in a high-energy competitive game.
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All materials on this site are used for informational purposes only! This website is created only for the personal enjoyment of the fans of Paul Michael Glaser, the Internet public and anyone else interested in sharing the journey of Paul Michael Glaser. Photos and multimedia samples were taken from various sources like TV , Mags, newspapers, media interviews, etc . No copyright infringement is intended, nor are any profits being made from their use. Written by Pam. Resources include the EGPAF, EGPAF Annual reports, phamphlets.